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Thursday, June 16, 2011

Trevor's story: Krabbe Disease & Universal Newborn Screening on the CBS Evening News with Scott Pelley

After several postponements of this story...we are told it will finally air this evening, Thursday, June 16th.
So cool...CBS Evening News retweeted my tweet on twitter from yesterday announcing the news story to today to 9,036 of its twitter followers....Keep your fingers crossed!

Friday, June 3, 2011

Trevor's story: Krabbe Disease & Universal Newborn Screening on the CBS Evening News with Scott Pelley

Please tune in on WEDNESDAY, JUNE 8th at 6:30pm (nationally) to see Trevor and his friend Gina, another affected Krabbe family from OH. Dr. Sanjay Gupta is the medical correspondent covering the story on Krabbe Disease and Newborn Screening. The airing of this story is during the debut week of the new anchor replacing Katie Couric. We are thrilled CBS chose to air this story during the debut week. Check your local CBS channel listing. It will air at 6:30pm nationally.

****Please note: SAN DIEGO, CA VIEWERS...I spoke to the producer of the show and was told the CBS Evening News airs at 6pm*****. Again, please check your local CBS channel listing for times in your area.

The interview segment will be posted online shortly after it airs.


 Nicole, Steve, Tyler & Trevor pictured with Dr. Sanjay Gupta